Brave New Electronic World


Big doings afoot in the personal health record arena.

Computerworld.com reported Dec. 13 that

A trade association representing health insurance companies and the Blue Cross and Blue Shield Association announced yesterday that they are developing a model for electronic personal health records that could be used by the 200 million people they cover.

The Blue Cross organizations and America’s Health Insurance Plans (AHIP) — a trade association representing health insurers — have developed a private, Web-based personal health record (PHR) that will be maintained by the insurer that processes a patient’s claims and administrative information, according to a statement. The PHRs, which have been designed to be portable so a person can take health data when changing health insurers, will include information such as patient demographics, treatment history, medications, drug allergies and immunizations.

Wow!

In addition, the article reports, that

five large companies, including British Petroleum America Inc., Intel Corp and Wal-Mart Stores, Inc announced plans to fund a Web-based PHR that can be used to store health information on the 2.5 million employees, dependents and retirees who have health insurance through one of the five companies.

Well, well, well. Double wow!

If Wal-Mart is going for the PHR gusto then I believe it’s safe to assume – online personal health records have arrived!

So the question does arise as the news arrives that Wal-Mart and five other large companies are collaborating on the development of "Web-based employee personal health records": how can the employees know their records will be secure and private?

According to the Government Computer News (CGN.com) story referenced above:


Individuals will be able to maintain comprehensive and up-to-date health histories of themselves and their families, said J.D. Kleinke, CEO of the Omnimedix Institute, the nonprofit group in Portland Ore., that is developing the system.

Dossia gathers health information on behalf of the individual from various sources and stores it within secured databases. Dossia’s open architecture will support multiple personal health applications, which lets users organize and summarize their information in ways that are most useful to them.

Health records will be secure and private, accessible only by the individual or by others to whom they have granted permission. Records also will be portable, so individuals can use the records even if they change employers, health plans or doctors.

That’s all nifty and swell, but privacy rights advocates are a tad worried.

Or, as the article continues:


The Patient Privacy Rights Foundation in Austin, Texas, however, denounced the plan to store their employees’ records in a centralized data warehouse linking hospitals, doctors and pharmacies.

"This is a prescription for disaster. Will these companies guarantee that employees’ personal health information will never be used against them or disclosed without informed consent?" said Deborah Peel, founder and chairwoman of Patient Privacy Rights. . Wal-Mart Stores plans to apply market pressure and incentives to get hospitals and doctors on board and will insist that health care providers adopt electronic records and prescribing as a condition of future business, she said. . "Electronic health records are essentially a good idea. But American health consumers have said repeatedly that they do not want their employers or their insurers to have access to their records," Peel said.

I have to agree with Peel, who the article says, recommends that a "neutral third party, such as a health banking repository, should house patient data."

In other words, to have my employer store my health and medical records in a system that would allow that employer access to my record? IF I were an employee of one of the companies colloborating on Dossia, I sure would want to know who could access my files, when that person could see my files, why that person should see my files at all and how much power I have to give or take that power away.

I’ve been tooling around Google looking for articles and blogs on personal health records. Doing so, I came across this at Harvard University’s Program for Health System Improvement e-newsletter, an interview with David Lansky, Ph.D., senior director for health programs at the Markle Foundation.

Dr. Lansky is a vocal advocate for all things that will make the country’s health care system "more responsive and accountable" and he’s a big proponent of personal health records. In fact, he states in the Q&A article at the PHSI’s e-newsletter that it’s "inevitable" that PHRs "will become mainstream."

He also has a terrific definition of the differences between a personal health record and an electronic health record. He says it better than I ever could, so I quote his definition in full below:

Q: How does a personal health record differ from the electronic health record?

DL: With a PHR, the individual accesses and controls their personal health information and they decide who sees it and what is in it – including information from all sources of care as well as the patient. The EHR is a medical legal document that is under the control of and is the responsibility of a particular clinical care setting.

While PHRs are a terrific thing for patients, Dr. Lansky laments that consumers don’t yet use PHRs as they do online banking and other electronic tools that improve our lives today. Naturally, he has an opinion about what needs to happen:

Q: What are some of the barriers to PHR adoption then?

DL: Patients are more likely to use a PHR if it is recommended by their doctor – and few doctors are convinced that PHRs add value, rather than risk and burden - to the care process. And there are few standards for PHR data that would enable the patient to easily take her information to a new doctor or health plan.

Q: What will encourage uptake?

DL: The short answer is that most people, most of the time don’t want responsibility for managing all of their health information. Their information becomes much more important when they get sick and need to make complex decisions. We expect that PHRs will be more highly valued when they are able to deliver specific value to people with specific needs – like managing diabetes or caring for a parent with Alzheimer’s disease – and they will do that best when there is a national information network that allows critical information to be easily and appropriately shared wherever it’s needed.

So why should you and I care? Again, I’ll let Dr. Lansky speak for himself:

A PHR may have value even if your doctor does not use an EHR. A lot of your medical data is already available electronically and can be brought to your home computer – your medications, lab test results, diagnostic images, procedures and diagnoses. We shouldn’t delay using PHRs until all health professionals are using interoperable, connected EMRs – we’ll be waiting a long time.

 

 

 

So my husband, daughter and I are in the process of moving from California to Pennsylvania. They have been in Pennsylvania since early July, staying with my husband’s parents while he looked for work. Our daughter is in school now and my husband recently started his new job.

I stayed in California to sell the house and work, retaining the all-important health benefits.

Our California house is now in escrow and we close November 17. We came across a house we both liked during my last visit to Pennsylvania in mid-October and we made an offer. We got it and we close escrow on Pennsylvania House Nov. 27.

What does this have to do with personal health records or medical records, you may ask? Bear with me. I’ll get to that.

So forms and signatures and paperwork with Social Security numbers, bank numbers and what feels to be a bajillion forms of various identification vehicles have been crossing the country via the U.S. Post Office and the Internet.

Can you say "vulnerable to identity theft?"

And what should happen as well last week is that I received no mail for two days in a row. Not even a political piece shilling for a candidate. Nary a "specials at Albertson’s" flyer.

Let alone our checking account statement.

Which. Should. Have. Come. By. Now.

The checking account statement which in less than three weeks will carry the proceeds from the sale of our house here in California which is, basically, a huge portion of our life’s savings

We have one of those condo-like mail boxes for our development, where each house receives its mail in one of eight mail boxes housed in a larger box. The mail deliverer opens up the back of the larger box and places the mail in the appropriate slot for each address.

I checked out the back of our box and what should before my eyes appear but the back door of the box broken into and folded back a schmear.

Just enough for a hand to reach in and take mail for us and one other unlucky homeowner.

So I checked USPS.com to see what I should do about possible mail theft.

First step: "Go to your local post office and report it."

The second day of no mail was a Saturday. I got home to see no mail after 5 p.m.

So I spend Saturday night and Sunday hyperventilating. Perhaps our mail wasn’t stolen; perhaps we just didn’t receive mail for two days. It could happen, I hoped.

I also had put in our mail forwarding request to Pennsylvania House online Thursday, the day before my mail stopped waiting for me in its box. While I requested mail forwarding start Nov. 17, perhaps someone got the date wrong and started forwarding our mail Friday.

Nope.

I went to the P.O. first thing Monday. Even talked to the guy who delivers our mail. He hadn’t started forwarding our mail so chances are if we didn’t have mail for two days, someone took it.

Strangely enough, I was quite calm. At least I knew. Knew that mail should have been there and that since it wasn’t, I have no idea if it was some neighborhood kid pulling a prank or an experienced identity thief, I had things to do. Pronto.

Our mail will be held at the Post Office until the box is fixed. I’d already called my boss at work to let her know I would be late Monday to check this out. I’d spoken with my husband Saturday night – and many times since – and told him to watch his credit card statement online carefully and to notify the credit reporting agencies of possible theft. I’ve also done the same.

And as soon as I could Monday I went to my bank to close our checking accounts and open new ones. And give our escrow officer the new account routing number for the electronic transfer of our house sale proceeds.

Everything at my bank was done electronically. The manager looked up our accounts and closed them and gave us new ones. He faxed a form to my husband for his signature on our joint account. I have new, temporary checks until my new ones come.

And we were done. Accounts secure again. We can even continue using our same debit cards.

I’ve already checked my accounts online and my old accounts are gone, replaced with our shiny new ones.

Electronic banking records, I love you!

And this is where electronic health records come in, for if being able to take care of such minutiae electronically with the help of someone who has the authority and the security clearance to do so was that easy for our banking records, I can’t wait for my medical records to go online.

I slept hardly at all Saturday and Sunday. Monday night? A quite restful full eight hours, thank you for asking.

 

 

Let’s say you have just moved across country with your family. Let’s say you’re moving in to your new home and, while performing some minor repair on your house, you cut your thumb badly with a small saw.

So you head to the emergency room or urgent care center. You don’t have your medical records with you – the last thought in your head as blood spurts from your thumb was to hunt down the medical records still packed away in a box in the garage – but your spouse isn’t worried, for she has the “card.”……..

Read Jean’s full article located at articles at MyHealthMyWorld (link opens a new window).